Inclusion body myositis is a rare condition that is described by the Cleveland Clinic as “an inflammatory and degenerative muscle disease that causes painless weakening of muscle”.
Inclusion body myositis (or IBM) is widely considered not just to be incurable, but untreatable. Receiving this diagnosis is discouraging, to say the least. Alan, Ken, Hannah, and Bruce were four men who received this diagnosis but never dreamed that their search for treatment would take them to Russia.
In a previous post, I wrote about the Lymphatech Clinic in the city of Perm, Russia that is providing treatment of conditions as wide-ranging as chronic leukemia, lymphedema, Type-2 diabetes, arthritis, and much more. The clinic’s treatment approach can be traced back to Soviet times and is bringing promising results.
The first American patient with IBM came to Russia from El Paso, Texas. Alan Spencer first heard about the clinic in early 2020. Alan had been diagnosed with IBM and when he heard about the Lymphatech Clinic, he approached them about potential treatment. The clinic offered a treatment plan and Alan came to Russia. This video by Russia Today tells that story.
Since IBM is a rare medical condition, it is a relatively small community of affected individuals and their families. So after the Russia Today broadcast, the clinic started receiving inquiries from around the world.
As an American who lives in Russia, I understand that for me, medical treatment in Russia is no stretch. As a matter of fact, it would be a challenge for me if I had to go anywhere else outside of Russia! And I have had the privilege of knowing the folks at Lymphatech as they treated some of my relatives from the States, and I even went for snoring treatment (it worked!).
But I can’t imagine what it would be like for someone in America to have been diagnosed with IBM and being told your only chance for treatment is to visit a place in Russia you’ve never heard before. As I’ve thought about that, I’ve come to understand that hope requires courage.
It is because of this that I’m proud to know both know this clinic and to have also met the four men in this video. Four men who not only had the courage to believe that it was worth pursuing treatment but were ready to take the risk to come to Russia to do so.
Meet Bruce, Ken, Hanna, and Alan, together with Dr. Nadia, Vadim, Igor, and Alex in this in-depth video as each side describes their medical treatment in Russia:
If you are interested in a more detailed treatment explanation from the clinic, follow this link.
As a patriot both of Russia and the USA (yes, you can be both!), I firmly believe that we have much to learn from each other. As a friend of the clinic, I believe that their message of both science and hope must be known around the world. We don’t know everything yet. No one is saying they are providing a cure. But I love what each of these men said. Sitting around and waiting for a “silver bullet” wasn’t an option for any of them. So, they came to a clinic in Perm, Russia.