Inclusion body myositis is a rare condition that is described by the Cleveland Clinic as “an inflammatory and degenerative muscle disease that causes painless weakening of muscle”.
Inclusion body myositis (or IBM) is widely considered not just to be incurable, but untreatable. Receiving this diagnosis is discouraging, to say the least. Alan, Ken, Hannah, and Bruce were four men who received this diagnosis but never dreamed that their search for treatment would take them to Russia.
In a previous post, I wrote about the Lymphatech Clinic in the city of Perm, Russia that is providing treatment of conditions as wide-ranging as chronic leukemia, lymphedema, Type-2 diabetes, arthritis, and much more. The clinic’s treatment approach can be traced back to Soviet times and is bringing promising results.
The first American patient with IBM came to Russia from El Paso, Texas. Alan Spencer first heard about the clinic in early 2020. Alan had been diagnosed with IBM and when he heard about the Lymphatech Clinic, he approached them about potential treatment. The clinic offered a treatment plan and Alan came to Russia. This video by Russia Today tells that story.
Since IBM is a rare medical condition, it is a relatively small community of affected individuals and their families. So after the Russia Today broadcast, the clinic started receiving inquiries from around the world.
As an American who lives in Russia, I understand that for me, medical treatment in Russia is no stretch. As a matter of fact, it would be a challenge for me if I had to go anywhere else outside of Russia! And I have had the privilege of knowing the folks at Lymphatech as they treated some of my relatives from the States, and I even went for snoring treatment (it worked!).
But I can’t imagine what it would be like for someone in America to have been diagnosed with IBM and being told your only chance for treatment is to visit a place in Russia you’ve never heard before. As I’ve thought about that, I’ve come to understand that hope requires courage.
It is because of this that I’m proud to know both know this clinic and to have also met the four men in this video. Four men who not only had the courage to believe that it was worth pursuing treatment but were ready to take the risk to come to Russia to do so.
Meet Bruce, Ken, Hanna, and Alan, together with Dr. Nadia, Vadim, Igor, and Alex in this in-depth video as each side describes their medical treatment in Russia:
If you are interested in a more detailed treatment explanation from the clinic, follow this link.
As a patriot both of Russia and the USA (yes, you can be both!), I firmly believe that we have much to learn from each other. As a friend of the clinic, I believe that their message of both science and hope must be known around the world. We don’t know everything yet. No one is saying they are providing a cure. But I love what each of these men said. Sitting around and waiting for a “silver bullet” wasn’t an option for any of them. So, they came to a clinic in Perm, Russia.
“Those who have had lymphedema know how it feels.”
I’m talking to Natalia in a clinic in the city of Perm, a two-hour flight from Moscow. She is describing the 14 years of pain and swelling in her legs that no doctors had been able to alleviate until she came in for treatment with the Lymphatech Clinic.
Natalia probably has no idea that this “miraculous” treatment began many years earlier during Soviet times. It was already in 1986 that the Soviet medical authorities first approved further development of medical treatment through the lymphatic system.
Natalia’s story of lymphedema being treated with lymphatic methods is perhaps unsurprising, but surprising are the results that the clinic is now seeing treating arthritis, diabetes, certain types of cancers, pneumonia, asthma, and even mouth-breathing and snoring.
The Lymphatech Clinic’s chief doctor, Professor Nadezhda Garyaeva, or as most of her foreign patients affectionately refer to her, “Doctor Nadya”.
The Lymphatech Clinic is housed in an unassuming two-story brick building not far from the center of the city of Perm. Nobody would pick out this city on the edge of Siberia as the birthplace of innovative medical treatment.
But the Lymphatech clinic’s chief doctor, Professor Nadezhda Garyaeva, begins to tell her story:
In 1983, I went to Professor Borisov in Leningrad (now St. Petersburg) to start a scientific career in lymphology – a branch of medicine about which many knew almost nothing. Namely, the lymphatic system largely determines the course and outcome of almost all diseases. We conducted research on the lymphatic vessels – I wrote a doctoral dissertation on this topic. I met with the academician Yuri Borodin, who headed the valuable Institute of Lymphology in Siberia. I was inspired by the possibilities that the lymphatic system offers to the doctor – a completely different approach to the treatment of the entire spectrum of diseases.
It is, of course, more than a little interesting that the lymphatic system, which affects so much of our health has remained largely ignored.
It is also unfortunate that the political and economic events in the Soviet Union, and then Russia, in many ways hampered the further development of these ideas. During the 1990’s, although Professor Garyaeva headed the largest department of the Perm Medical Academy, there was no funding for research, so she bravely created a private research institution that carried on this important work. As a result, 9 medical method patents were developed.
A Soviet medical document from 1987, related to lymphatic treatment.
For many years, the Lymphatech Clinic both successfully and quietly handled its work among local patients and was mostly known for its cutting-edge cancer treatment. However, it is now starting to receive some international attention, and patients are making the trek internationally to this city in the heart of Russia.
Mike French has suffered from asthma and chronic sinus issues for many years. Listen as he tells his story of visiting the Lymphatech Clinic in Perm.
Susanne Trokhymenko of England talks about how she was unable to find relief from her lymphedema, even after seeking medical attention for many years. But at the Lymphatech Clinic, she was able to find relief after just two treatments.
Wee Tiong Howe is the head of an investment capital company in Singapore. He describes his time at the Lymphatech Clinic as “Amazing. They were able to solve all of my issues in an extraordinarily short period of time.”
Patients are surprised to learn the benefits of this innovative treatment and how the lymphatic system affects so much of our health. But even more surprising is how the Lymphatec Clinic doctors take the time to thoroughly study their situation before moving into the treatment phase. A first visit with Professor Garyaeva generally lasts at least two hours, as she is careful to look through all of the details and listen to the patient attentively. The treatment itself is outpatient and usually involves a daily injection with the purpose of bringing health through the lymphatic system. Since the injection is targeted, the dosage is lower and more effective than what a patient would experience elsewhere in the world.
The blue highlights in this heart mark the lymphatic system. When most patients see how significant the lymphatic system is for human health, their only question is “Why haven’t we heard about this before?”.
John is a retired plumbing contractor from the State of Ohio in the USA who was diagnosed with chronic leukemia a few years ago. His latest tests showed a spike in his white blood cell count, but his American doctors offered him no options except to wait.
John decided to send his tests to the Lymphatech Clinic. Three oncologists at the clinic, including Professor Garyaeva, spent 4 hours each, studying John’s test results. They then sent him a detailed report in English. It was surprising for John to learn as the Lymphatech doctors explained that as they are members of both the Russian and American Cancer Societies, that they understand the approach to cancer treatments in both nations. They then explained that with his present white blood count, that in Russia, chemotherapy treatments would have already been prescribed.
The Lymphatech doctors’ report for John then explained that they had a high level of confidence that they could at least positively affect John’s situation, with a lymphatic system treatment.
Pleasantly surprised both by the doctors’ thoroughness, the price, and also simply an option other than “just waiting”, John immediately made plans to fly to Perm. Listen as John describes his experience at the Lymphatech Clinic in detail on the clinic’s Facebook page.
Much of the clinic’s results can only be treated as anecdotal as there is not a large enough sample size to predict future results. But the list is more than fascinating: Alzheimer’s, Type 2 Diabetes, multiple sclerosis, arteriosclerosis, and much more.
On a personal note, I am proud to say that I am working with the Lymphatech Clinic. And it is without reservation that I can say that this is one of the most both intriguing and useful of Russia’s gems that I have been able to uncover in 20 years of living in this great nation.